NEW YORK AND YOU LOVE ME, June 6, 2023 /PRNewswire/ — The Parkinson’s Foundation has received a grant from the Robert W. Woodruff Foundation to expand genetic testing, genetic counseling, and educational research opportunities for black and African Americans with Parkinson’s disease (PD). Through PD GENERATION: Mapping the future of Parkinson’s diseaseThe grant supports efforts to increase community participation in collaborative research with Morehouse School of Medicine In Atlanta.
“We are grateful for the generosity of the Woodruff Foundation in helping us expand the GENERation of PD and provide additional support to Black and African Americans in the Parkinson’s disease community,” said the Parkinson’s Foundation chief scientist James Beck, Ph.D. “PD GENEration is designed to be inclusive and accessible to all populations, and this grant allows us to elevate the scope of study through our partnership with Morehouse.”
The initiative will provide free genetic testing and genetic counseling to Black and African American participants with PD, conduct educational workshops introducing the role of genetics in PD, and further empower individuals with PD by determining eligibility for relevant clinical trials. No two people with PD are alike, so ensuring the diversity and inclusiveness of research participants is critical to accelerating discoveries toward a cure.
Through PD GENEration, the Parkinson’s Foundation works to increase the representation of marginalized population groups in research and aims to make free genetic testing accessible to people with PD. Work in collaboration with Chantale BransonMD, the first ever movement disorder specialist at Morehouse School of Medicinethe Parkinson’s Foundation is committed to improving health disparities in the PD community.
“By making genetic testing, counseling and education more accessible to Black and African Americans with PD through this partnership, we hope to significantly improve clinical outcomes and increase research participation,” Branson said.
PD GENEration is a global genetics initiative that offers genetic testing for clinically relevant PD-related genes and free genetic counseling for all people with PD. Genetic testing and counseling through PD GENEration is available in English and Spanish. Currently, participants are enrolled from all 50 US states, Puerto Rico and the Dominican Republic.
Rus Hardinpresident of the Robert W. Woodruff Foundation, said, “The Woodruff Foundation is pleased to support the Parkinson’s Foundation and Morehouse School of Medicine as they join forces to extend promising genetic research to more Parkinson’s patients Georgia.”
To learn more about PD GENERATION, call 1-800-4PD-INFO (1-800-473-4636) or email [email protected]. For questions about joining PD GENEration at Morehouse, email [email protected] or register directly by clicking here.
About the Parkinson Foundation
The Parkinson’s Foundation improves the lives of people living with Parkinson’s disease by improving care and promoting research for a cure. In everything we do, we draw on the energy, experience and passion of our global Parkinson’s community. Since 1957, the Parkinson’s Foundation has invested more than 425 million dollars in the research and clinical care of Parkinson’s. Connect with us at Parkinson.org, Facebook, ChirpingInstagram or call 1-800-4PD-INFO (1-800-473-4636).
Information about Parkinson’s disease
Affecting approximately one million Americans and 10 million worldwide, Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s and is the fourteenth leading cause of death in the United States. It is associated with a progressive loss of motor control (eg, tremor or tremor at rest and lack of facial expression), as well as nonmotor symptoms (eg, depression and anxiety). There is no cure for Parkinson’s and 90,000 new cases are diagnosed each year in the United States alone.
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SOURCE Parkinson Foundation
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